Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://personalstorypublisher.com
Members: 134
Latest Activity: Mar 23

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Comment by Karen on May 24, 2009 at 6:04pm
Hello. My name is Karen and I have a 5 year old named Leah Rose that was diagnosed with Freeman Sheldon Syndrome aka Whistling Face Syndrome and she has a repaired midline cleft in the soft palate. Hope you are all having a great 3 day weekend!

http://www.myleahrose.com/blog/
http://twitter.com/leahrosesmom
http://www.ageorgiaangel.com/blog/
http://twitter.com/ageorgiaangel
Comment by shelley k on May 10, 2009 at 9:13am
hi everyone just a simple shout out to all of the "special mom's" with special needs kids, hope you all have an extra special and magical day! stop by and say "hi!"
http://iamstillstandingafterallthistime.blogspot.com/
Comment by Annissa on May 6, 2009 at 11:36am
I'm thinking about taking the time of putting a list of our blog links together and putting them in categories based on our childrens' diagnoses... if anyone is interested, please let me know - post your link & your child's issues.
Comment by Annissa on April 23, 2009 at 7:57pm
Hello - I have 4 boys, 3 are "Unique!" ... My 13 yr old has ADHD/ODD and ITP Bleeding Disorder, my 7 year old has a rare genetic disorder called Mosaic Trisomy 16 among other things, my 2 year old has Dandy Walker, closed Cleft Palate, is Failure to Thrive and many other things in the air right now... and my 7 month old is HEALTHY!!! I am really hoping to get in touch with other moms! I have two blogs, my *normal* one and my one to update on the kids medical stuff. :)
Comment by Rachel on April 21, 2009 at 10:01am
Hey there! My youngest son has Autism and we learn something new everyday. I live in a small town and don't know any other parents with speical needs children (like Autism). I so excited to join this group and get to know other special MOMS!!!!
Comment by shelley k on April 15, 2009 at 9:38pm
Hi everyone, I'm new to this group and to the whole "club"... but i am definately not new to special needs. I have 2 daughters both of which were born prematurely and my youngest is now 17 and has cerebral palsy. I'm writing my blog to share our families triumphs and struggles and look forward to sharing with all of you. you can find my blog from my homepage here.
hugs and happiness,
shelley <3
Comment by MT on March 21, 2009 at 3:50pm
Hi, I'm stopping in :) My son has autism and my daughter is neurotypical but has an eye condition called anesometropic amblyopia - it is a type of lazy eye.

My blogs are
The Bon Bon Gazette
Amblyopia Kids: Adventures in Amblyopia
Comment by Sandy on March 15, 2009 at 4:05am
Hi Ladies
I will chat more later - I am tired - but wanted to say - Hi
I am a mom/wife - we have twins born 12 wks early - 22 yrs ago
1 is fine - 1 not so lucky
I work from home - for a wellness co
hope to chat w/ many of you soon
right now sleep is calling my name

Sandy
Comment by Holly Collins on March 7, 2009 at 10:50am
Attention Massachusetts Moms:

I am currently working and advertising to pull together a group of special moms (those who have special needs kids) and who live in Mass and in or around the south shore area.

We are looking to meet one or twice a month for dinner to talk, share, and make new friends.

If you live in the area and are interested in making new friends, please don't hesitate to email me at hollyncollins@gmail.com.

So far some of the women interested are those with autistic kids and kids with developmental disabilities, and are in the 7-14 age group.

Looking forward to meeting you south shore mass. moms!!

Holly
Comment by Carrie on January 26, 2009 at 12:31am
Just wanted to let everyone know we got a diagnosis finally -- Gaucher's Disease "most likely" type 3 (but I'm not convinced it isn't type 1). It is much better than what the lead diagnosis was, but if they are right, I have about 15 to 20 years to find a treatment and cure and can use all the support and ideas I can get!
 

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