Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://cherishingmommy.blogspot.com/
Members: 135
Latest Activity: Sep 4

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Comment by Jaime Huff on March 13, 2011 at 9:53pm
Dawn, a neurologist probably wouldn't be the best place to start.  You really want to see a Developmental Pediatrician instead of a General Peds and have THEM order the testing and referrals.
Comment by Jaime Huff on March 13, 2011 at 9:50pm
I have a giveaway going for a Yoplait Prize Pack.  Frugal, Green and Book Nerding Mom of a Shaken Baby Survivor
Comment by Margot Finke on March 9, 2011 at 10:05pm

I received this today from my Conputer/Internet Guru - Kim Komando.  I only download what she has tested and approved.

If your child is autistic, you might find this helpful.

Robot helps autistic kids play

A robot is helping autistic children understand emotions. Kaspar the robot looks like a boy. It can simulate playing and laughing. Researchers say the robot is incredibly effective in helping autistic children become more affectionate. There are iPad apps made to help with autism, too. Click here for the best ones. >>

 

Margot's Magic Carpet - all my books on one page.
http://perfectmagiccarpet.blogspot.com/
Comment by Margot Finke on March 7, 2011 at 5:26pm

Dawn, I really feel for you, mate.  No wonder you feel like "snapping."  I got hot under the collar just reading your post.  I REALLY think you would find joining a support group for the parents of child diabetics very helpful.  You would not feel so isolated and alone.  Talking to people who have the same problems (and maybe some solutions as well) will embower you no end!!

Go online and search out groups near you - or even just online.  Keep in touch and let me know what you find.

 

Margot's Magic Carpet:
WIN a FREE copy - or read a sample page.
http://perfectmagiccarpet.blogspot.com/

 

 

 

Comment by Dawn Lidwell on March 7, 2011 at 12:53am

Thanks Margot. I do plan to ask for a referral to a neurologist also... even if I have to stand in that office and not leave till they give me one! For years these pediatricians have been telling me "its normal", and obviously its not!

 

Now, to boot, im also dealing with my son's school nurses. GRRR ready to SCREAM! My son has type 1 diabetes, has been diagnosed for 2 1/2 years, and they are trying to educate ME on what to feed my kid?! For freaking REAL?! He is the first child theyve had this young with this damn disease, this is the first year theyve physically had to count the carbs, dose the insulin, troubleshoot screwy numbers, the whole freaking nine yards (which HALF the time they are calling ME asking ME what to do), and they have the damn nerve to tell ME about what the hell the difference is between a complex carb and simple carb is??? Are they trying to be his damn nurse at home too?! OMG im SO freaking ready to SNAP!

 

Thats ok, I'll fix them up. They want me to put him on a damn whole grain diet... FINE. Let's see how well they can get him to eat nothing but whole grain tostito chips, whole grain crackers and cheese, and peanuts... over, and over, and over, and over, and over, and over..... oh y eah, and over again! Hes 5! Come on people!(meaning nurses). The only damn thing I asked for was that if they give him a freaking apple as a snack after gym/recess... to give him something out of the snack bag that IVE PROVIDED as well, to help carry his bgs through for the next 2-3 hours till dinner... otherwise, his sugar crashes. They've SEEN this, and they have the audasity to question ME?! Hell, they arent even smart enough NOT to give him a freaking cupcake WITH ICING  while his blood sugar is 300, and not give him something else to prevent a crash later. What happened? Yep, you got it! 3 hours later, they are freaking calling me because his blood sugar is 42! Oh, but they hold the damn licensure. I guess that means they are God and know every freaking thing on the PLANET about Type 1 Diabetes and how to manage and care for it, right?!

 

Sorry, needed to vent.

Comment by Margot Finke on March 5, 2011 at 4:55pm

If you want to encourage your Boys or other reluctant readers to read:

Read TERRIFIC REVIEWS of my mid-grade adventure for boys. 

http://mysite.ncnetwork.net/restbcm8/GAP Reviews.htm

Margot's Magic Carpet - all my books on one page.

WIN a free copy of Taconi and Claude

http://perfectmagiccarpet.blogspot.com/

Comment by Margot Finke on March 1, 2011 at 4:17pm

Dawn, my heart goes out to you, mate.  Still, at least you have teachers going to bat for your daughter now. 

I would think you need a referral from your doctor to a child neurological specialist.  They deal with the brain and how its connections work.  Perhaps it is time to find a new and more involved pediatrician.  Keep in touch: lt us know what you discover.


Hugs to you and your two kids.

Margot's Magic Carpet - all my books on one page http://perfectmagiccarpet.blogspot.com/

 

 

Comment by Dawn Lidwell on March 1, 2011 at 2:34am

I dont know if you all remember me from, oh, its prolly been almost a year or more. My 5 year old son has Type 1 Diabetes and speech problems (hes getting speech therapy in school), and my 4 year old daughter has struggled with some form of learning problems. I came in here back then trying to get some ideas on what could be going on with my daughter. Shes 4 years old and shes not retaining things like color recognition, number recognition, letter recognition, shape recognition, amongst a vast amount of other things/issues weve been seeing in her over the years. Anyway, she started Head Start last fall and has an IU8 teacher working with her for 30 minutes every 2 weeks. Last week I spoke with her teacher, and IU8 teacher about her progress in school, or lack there of. Her IU8 teacher is seeing everything we have seen with her over the course of the last 3 1/2 years (YAY! IM NOT CRAZY!), and she is just as baffled about it all as we have been... and was very shocked that when i told her i tried expressing these concerns to her pediatrician over the years, at every check up, that they seemingly just pushed our concerns under the carpet telling us she was normal and that kids just learn at different rates. She is sending me a letter home stating that she is recommending us to have my daughter seen by a psychologist for a more indepth evaluation as to what is going on with her, so we can taylor her IEP accordingly.

 

I did some research, and a friend of mine who has a daughter with autism gave me a link to this questionaire thing that may help us get some kind of insight on what COULD BE going on. I took the questionaire, and the score came back saying "mild PDD". I know that that may  not be an accurate thing, and the only way we can get a true diagnosis on whatever is going on, we will have to have her seen by the psychologist.

 

This whole experience has been really... bittersweet... for me personally. I am SOOOOOO GLAD that there is finally someone else (two people actually, IU8 teacher and regular teacher) that are seeing the very same problems we have been complaining about for years. On the other hand, I must admit, I am feeling depressed about it all at the same time. Depressed just because, well, like everyone, i want the best for my kids and i want them to have an easy life, and well, from someone who struggles with learning problems (me, but was never diagnosed with anything because my parents never HAD me seen by anyone for my learning problems, just said i wasnt trying hard enough), I know how much of a struggle school can be for a child with any kind of learning problems. Sorry for venting. I know that things could be worse for her. But, I just had to post to somewhere that I knew other parents can understand what I am feeling right now. Feel free to tell me to shut up if I am just way off my rocker, or babble too much LOL!

 

Dawn

www.sugarfreecandyland.blogspot.com

Comment by akbutler on February 28, 2011 at 9:34pm
I wanted to share my post today inspired by a post I read on ASD and PTSD.  Finally coming to terms with a memory that has been haunting me http://trydefyinggravity.wordpress.com/2011/02/28/i-wonder-what-wou...  Please let me know what you think.
Comment by Margot Finke on February 18, 2011 at 3:51pm

Kathy, good to see you here.  Your upbeat attitude is an inspiration.

Our son was a reluctant reader and one daughter had a mild form of dyslexia. She received early help and has learned how to compensate.  Our son loved to be read to, he just would not pick up a book and read for himself - until I discovered stories that interested him and fit with his hobbies and likes. 

As a writer I have  kept this in mind.  I write mid grade books with reluctant readers and boys in mind, as well as rhyming picture books that deal with Dyslexia, and the big changes kids often have trouble dealing with.

Margot's Magic Carpet -
all my books on one page.

 

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