Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://personalstorypublisher.com
Members: 134
Latest Activity: Mar 23

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Comment by Colleen on July 22, 2011 at 7:20am
Hi everyone! I'm new. Not to comfortable here yet but this is the group I fit into I think. My toddler has SPD and I foresee  an OCD diagnosis coming soon. Anyway, glad to be here and I look forward to checking out your blogs!
Comment by Prerna Malik on July 6, 2011 at 10:22am

Hi everyone!

 

We’re celebrating this month of freedom with a contest on FB where we’d like to hear about your best kids’ book on patriotism. One lucky winner will win an 18” My Pal Doll the Patriot (boy or girl doll)!

 

Join in the discussion and win! That simple. Contest extended till 07/10. Low entries!!

 

 

Thanks

 

Prerna Malik

Blog and Social Media Manager

Comment by May May on June 13, 2011 at 12:50pm
Hello my friends,hope you all had a great weekend,is Monday mingle hopping time,the intent of this hop is for you to discover new blogs to follow,get new followers/readers in your blogs.Follow the link below to link up your blogs.Don't miss out,see you there.
Have fun hopping.
Comment by Nancy Konigsberg on May 26, 2011 at 2:07pm
Please check out this post on Milestone Mom.  AMC Theatres offers sensory friendly films.  Lights are up, sound is down and kids can run around. AMC partnered with The Autism Society in creating these events.
Comment by Margot Finke on May 23, 2011 at 8:32pm

 

It is my pleasure to offer a

FREE copy of my mid-grade time-travel  adventure
to all the


SPECIAL NEEDS KIDS
on this list.

Give the LINK to other parents.


I had such fun bringing characters from my
                    3 latest books together in one fun short story.                  

 

 

DOWNLOAD HERE

 

                                                      Margot’s Magic Carpet
                                               Kids Books With a WOW Factor!
                                       http://perfectmagiccarpet.blogspot.com/

Comment by Cheryl F on May 23, 2011 at 1:50pm

Hi Ladies 

I just wanted to share my latest post, our little Joel got his Wish from Make a Wish

would love for you to pop by and share in his joy!  

http://ontheoldpath.blogspot.com/

Comment by Lori Thayer on May 17, 2011 at 3:27pm

I just attended an Autism/Aspergers conference on 5/13. It was great. Temple Grandin was a featured speaker. I came away with a lot of great ideas for my 12 year old stepson (who has high functioning Autism).

I recently wrote a blog post about the different types of thinkers that Temple talks about.

http//www.lorithayer.com

http://twitter.com/LoriThayer

http://facebook.com/1LoriThayer

 

We also learned about the new Temple Grandin school that will be starting soon in Boulder, CO.

Comment by Fin Anilyn Anthonelly on April 28, 2011 at 11:38am

Madison,

I have found that most often the ability to handle dual diagnosis is not as hard as some people make it.

My son is PDD-NOS and OCD. What you have to do is treat one while taking the other into acct. EG: Treat the Autism and be sure to be aware of his OCD.  
My son doesnt like to get his hands dirty or to have his schedule disrupted. So to best treat his PDD, we always made sure that we didn't perplex him with too much stimulation and not to do things that would trigger his OCD.
Also, find out if he is a sensory seeker vrs someone who avoids alot of stimuli.  What sets him off ect.  These are good things to help find a way for regulation.  So when he gets pushed too far in therapy, at home you can help him regulate himself without huge meltdowns.  Though, some of them are unavoidable.
I suggest watching Temple Grandin speak on youtube and a good dailey dose of Floor time (  http://www.autismweb.com/floortime.htm  ) 
I have a long list of good resource books too if you are interested.
I also blog about things autism related. Last one was about therapy items on the cheap pt 1 ( Mouth toys for speech therapy).
My son is 5 and has had great results with therapies I have him enrolled in. I am open to sharing anything that might help someone else.

Comment by Kathy Radigan on April 4, 2011 at 7:34pm
Check out my latest post "Student of the Week" on my blog www.mydishwasherspossessed.blogspot.com
Comment by Dawn Lidwell on March 20, 2011 at 10:56pm

Thanks Margot. I actually contact them quite a bit LOL! they have been a HUGE help for me over the last year!

 

Nancy, thanks so  much for your input! I will definitely check out your blog tonight! I've had her eyes tested by a specialist thinking it could be a visual issue (or possibly color blindness) and she checked out ok, though he did say that she does have an astigmatism but doesnt need treated as of yet. He said, if she were to take her drivers test, shed pass the vision test, but by the time shes in kindergarden (which she will start kindergarden late due to her birthdate) she will most likely need glasses, but for now, she is seeing well enough not to need them yet. We did anticipate her needing glasses in the future anyway.

 

As for language skills, she was tested for that at the beginning of the school year (as head start tests almost all the kids, and i specifically asked them to run a full testing on her prior to entering anyway. my son has speech issues, but is improving) and she tested ok with that as well... though those test results were on the "low" end of the scale, so to speak, but was good enough to not need speech therapy.

 

The main things her teacher and special needs teacher seem to be concerned with is her difficulties to retain previously learned information, and to apply that information. That is one of my concerns as well, as well as her ability to focus, maintain her attention on a given task (i understand 4 year olds have a short attention span, but i feel hers is shorter than most), some slight behavior issues we've come across (her temper tantrums are still similar to those of the "terrible twos phase", which, im not overly concerned about because i know shes still 4 after all lol!), along with a variety of other things I've seen.

 

I'm not really thinking "the worst" because honestly, whether its a mild "form" (for lack of a better word) of autism, PDD, or whatever the case may be.. I dont really care WHAT it is, just want to find out what exactly IS going on, and how to best help her. I've pondered and done enough research, even though i feel im coming up empty handed until she is seen next month... to get myself past the "reality hit me smack in the face" phase and have since moved on to the "lets just make this better" phase. Going through my son's diagnosis of type 1 diabetes, I pretty much know what my fight or flight reactions are. I didnt really go through a denial phase when he was diagnosed. My initial reaction when he was diagnosed, (though yes i did cry over how his life would change), was to learn all i could about the disease, take the bull by the horns, and just DO IT. Once I get her diagnosis, if there is one, I will most likely do the same... learn all i can about it, then take the bull by the horns and do whatever is needed to be done to help her the best way we possibly can. I have a feeling I'll be getting less sleep than I already do once we find out what is going on, if for no other reason, just so i can have more time to work with her than I do now, but, it is what it is. Mama's sacrifice a lot more than just a little sleep for our babies, right? lol.Either way, I've pretty much mentally prepared myself for whatever diagnosis they can throw at me at this point. I just hate this stupid waiting game.

 

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