Mom Bloggers with Special Needs Kids


Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Members: 135
Latest Activity: Sep 4

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Comment by Sandy on June 2, 2009 at 3:44pm
Hi Everyone
well I'm old hat to this world - meaning I have many yrs on most of you ladies
I have twin boys - Dane and Kyle - now 22 yrs old - born 12 wks early 27wks GS
1lb 12oz and 1lb 13oz
Dane is fine now - working as heavy epuip oper. - he had a trach and stutters - but all in all he is doing great - he is into bodybuilding - I think he will look like batman in a few yrs
Kyle not so lucky - mild CP / hip dysplshia / epilepsy (Epilepsy SUCKS)
he is recovering from his 2nd brain surgery for epilepsy control
in the process - he lost use of his right hand and it made his right leg weaker
he use's a quad cane in his left hand
so he is a fall risk
so he needs someone with him 24/7
He is doing great and is a wonderful guy
he give's me the strength to go on daily
so I am building my business for him (its will able) to be sure he will be taken care of after I'm gone
My goal is to buy 100 acres and build a self sufficient - eco friendly - off the grid COMMUNE for parents to live that have special needs kids
If any one wants to know more about this and wants to help email me

Comment by Maryann DellaRocco on June 2, 2009 at 2:59pm
Hi, I'm new to the boards, but not to autism and special needs. My name is Maryann and I have 2 boys. My oldest has PDD-NOS which is on the autism spectrum and my youngest has a speech delay. My oldest also has sensory processing disorder and hypotonia. He has been in physical therapy since 8 months old. We do biomedical interventions such as GFCF diet and supplements to recover my son from Autism and it is working. You can read a lot about it on my blog or ask me here. I am a rescue angel with generation rescue (Jenny McCarthy and Jim Carrey are board members) and help other parents start biomedical interventions for their children.

Can't wait to start chatting with you all.
Comment by Cherishing Mommy on May 26, 2009 at 12:31pm
Hello all you special moms!!! I am Christa and I have two beautiful kids. My youngest has special needs. She doesn't have a diagnosis yet....I suppose we probably never where. The hardest part about not knowing is that the doctors continue to tell me that "becuase there isn't a diagnosis, she may outgrow her disabilities"....UGH the torture. My daughter has seizures, global delays and Ataxia....but she is probably one of the GREATEST people that I know and she inspires me in ways that I can't even describe.

Have a GREAT day...

Comment by Karen on May 24, 2009 at 6:04pm
Hello. My name is Karen and I have a 5 year old named Leah Rose that was diagnosed with Freeman Sheldon Syndrome aka Whistling Face Syndrome and she has a repaired midline cleft in the soft palate. Hope you are all having a great 3 day weekend!
Comment by shelley k on May 10, 2009 at 9:13am
hi everyone just a simple shout out to all of the "special mom's" with special needs kids, hope you all have an extra special and magical day! stop by and say "hi!"
Comment by Annissa on May 6, 2009 at 11:36am
I'm thinking about taking the time of putting a list of our blog links together and putting them in categories based on our childrens' diagnoses... if anyone is interested, please let me know - post your link & your child's issues.
Comment by Annissa on April 23, 2009 at 7:57pm
Hello - I have 4 boys, 3 are "Unique!" ... My 13 yr old has ADHD/ODD and ITP Bleeding Disorder, my 7 year old has a rare genetic disorder called Mosaic Trisomy 16 among other things, my 2 year old has Dandy Walker, closed Cleft Palate, is Failure to Thrive and many other things in the air right now... and my 7 month old is HEALTHY!!! I am really hoping to get in touch with other moms! I have two blogs, my *normal* one and my one to update on the kids medical stuff. :)
Comment by Rachel on April 21, 2009 at 10:01am
Hey there! My youngest son has Autism and we learn something new everyday. I live in a small town and don't know any other parents with speical needs children (like Autism). I so excited to join this group and get to know other special MOMS!!!!
Comment by shelley k on April 15, 2009 at 9:38pm
Hi everyone, I'm new to this group and to the whole "club"... but i am definately not new to special needs. I have 2 daughters both of which were born prematurely and my youngest is now 17 and has cerebral palsy. I'm writing my blog to share our families triumphs and struggles and look forward to sharing with all of you. you can find my blog from my homepage here.
hugs and happiness,
shelley <3
Comment by MT on March 21, 2009 at 3:50pm
Hi, I'm stopping in :) My son has autism and my daughter is neurotypical but has an eye condition called anesometropic amblyopia - it is a type of lazy eye.

My blogs are
The Bon Bon Gazette
Amblyopia Kids: Adventures in Amblyopia

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