Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://personalstorypublisher.com
Members: 134
Latest Activity: Mar 23

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Comment by akbutler on October 20, 2010 at 4:26pm
In honor of Spirit Day today, I'm sharing a conversation I had with someone I've never met. It's about bullying, tolerance, and sharing with one another.

http://trydefyinggravity.wordpress.com/2010/10/20/i-wont-back-down/
Comment by Hazel Nut on October 20, 2010 at 10:21am
I am the mom of 4 boys and 1 girl, can you guess which one came last, lol.

My oldest son has been dx with ADHD and has been dx with Failure to Thrive. He is about 15 pounds underweight and I struggle everyday to put weight on him. We have had many tests run and many of them run several times and we still can't figure out why he hasn't really gained any weight in years. I firmly believe if we can figure out why he is Failure to Thrive and address that issue, all of his ADHD "symptoms will go away.

My 4th son is 2 1/2 and has a Congenital Heart Defect. His Heart is described as Double Inlet, Single Ventricle with Pulmonary Atresia and Malpositioned Great Arteries. He has had 2 out of 3 Open Heart Surgeries. He is my Hero!
Comment by Stacie on October 13, 2010 at 7:21pm
Special Needs Blog Hop has launched! Hope to see you there :)
Comment by akbutler on October 5, 2010 at 12:48pm
In honor of the 30th anniversary of the Sensory Processing Disorder Foundation, we're sharing our stories of living with SPD. Please check mine out at http://trydefyinggravity.wordpress.com/2010/10/05/from-birth-guest-... and share your story there too. Thanks!
Comment by Dawn Lidwell on October 4, 2010 at 11:31am
Hi everyone! I did an introduction a while ago, but I thought I'd do another one since I have just started a new blog! My new blog's name is Sugar Free CandyLand. I am a mom of two beautiful kids. My oldest has Type 1 Diabetes. I blog about his ups and downs, talk about some diabetes supplies we use or try, provide information on what diabetes is, sometimes even post recipes! If you would like to follow my blog, please feel free!

www.sugarfreecandyland.blogspot.com
Comment by akbutler on October 1, 2010 at 2:29pm
Hi! I'm a mom of three boys - our middle one has autism spectrum disorder and sensory processing disorder. I write about that and other things at http://trydefyinggravity.wordpress.com/.
Pia - I've loved your work on The Thinking Person's Guide to Autism. Glad to find you here too.
Alysia
Comment by Tammy Blockinger on August 18, 2010 at 4:01pm
i have a girl with adhd,esophoric in her left eye,which may contribute to her behavior and possibly a mild mood disorder.my 4 yo was just recently diagnosed w adhd and possible cognitive delays,she also has dysarthria ,possibly a form that is more significant than other children her age.for these reasons i am again homeschooling ,so i can teach them at their own pace ,attention spans.also so that my 4 yo isn't placed in aclass with kids of various ages/disorders or a regular class that she will not be able to follow along or have difficulty speaking in a manner that her teacher will not understand because i'm told if she needs a flip and talk book ,an aid would have to be trained on it and it would put her in a level 4 setting when she begins kindergarten.are there other parents like me,who want to homeschool and should be able to but are recieving grief and preaching why public school would better suit their needs.again,i have a 19 yo who was placed in school and now i'm finally having her tested and treated thru kki.how can we place our child in a system that only passes along and is no help when your child is bullied ,teased and left to fend for themselves?
Comment by Tammy Blockinger on August 18, 2010 at 3:53pm
in my state of md.if your child is in a public school you have to request an iep which the school has 30 days to do testing and recommendation and this also means the services will be provided by the school system meaning some insurances will not pay for outside services or testing if it can be done by the school.this is why i'm homeschooling so my girls can be tested and treated by a hospital that is renown for treating special needs children.i won't allow my daughter to be placed in a system that cannot accommodate her specific speech disorder or put my 6 yo who is intelligent with adhd and has esophoria in a level 4 class room,the law should be: if you feel the schools are nit treating the disorder properly or passing a child along then we as parents should have the right to be tested by whom ever the parent chooses.my 19 yo daughter has an iq of 50 w an unlabeled speech disorder,who was placed in a level 4 and could not receive outside testing,i finally won with her insurance to have her tested and label her disorder because i was told all of her testing and services were done at her school.level 4 contains a variety of disorders but from my experience ,it also contains unruly children and pregnant teens.adhd needs to be handled differently for each child.
Comment by Dawn Lidwell on August 9, 2010 at 11:00pm
I just thought i'd give you all an update on my daughter, whom we thought might be ADD or ADHD. We had her seen by a pediatric psychiatrist last month. He said he didnt think she was ADHD, but just had "bad habits" (sigh, I so dont agree with the fact this is just "bad habits", but, anyway). He suggested we have Early Intervention Unit through the Head Start she is starting this year, take a look at her and do an eval to see if there are any learning disabilities she may be having, as well as have a pediatric ophthamologist check her for color blindness. Right now, she is dealing with reoccurring chalazions in her eyes, so they are wanting to wait till those go away before doing an eye test. Shes had one surgery already to remove 5 chalazions, and theyve come back in one eye. now she has 5 in one eye but they arent major enough to do surgery on yet, its a wait and see for now. She should have her eval with the IU8 team within the next 30-60 days. And, the psychiatrist wants to see her back again mid next month. So, guess we'll just have to wait it out and see what happens.

Also, my son with type 1 diabetes seems to be doing well! We still struggle with highs and lows, but thats gonna happen anyway because in his age, its hard to keep great control of diabetes. But, overall, hes doing well and we get lots of compliments from his endocrinologist about how we are managing him and taking care of him!
Comment by Michelle Howard on July 25, 2010 at 5:00pm
Oh by the way that's me in the background looking on as CJ gets ready for baseball (Miracle League of Westchester!)
 

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