Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://cherishingmommy.blogspot.com/
Members: 135
Latest Activity: Sep 4

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Comment by Tammy Blockinger on August 18, 2010 at 3:53pm
in my state of md.if your child is in a public school you have to request an iep which the school has 30 days to do testing and recommendation and this also means the services will be provided by the school system meaning some insurances will not pay for outside services or testing if it can be done by the school.this is why i'm homeschooling so my girls can be tested and treated by a hospital that is renown for treating special needs children.i won't allow my daughter to be placed in a system that cannot accommodate her specific speech disorder or put my 6 yo who is intelligent with adhd and has esophoria in a level 4 class room,the law should be: if you feel the schools are nit treating the disorder properly or passing a child along then we as parents should have the right to be tested by whom ever the parent chooses.my 19 yo daughter has an iq of 50 w an unlabeled speech disorder,who was placed in a level 4 and could not receive outside testing,i finally won with her insurance to have her tested and label her disorder because i was told all of her testing and services were done at her school.level 4 contains a variety of disorders but from my experience ,it also contains unruly children and pregnant teens.adhd needs to be handled differently for each child.
Comment by Dawn Lidwell on August 9, 2010 at 11:00pm
I just thought i'd give you all an update on my daughter, whom we thought might be ADD or ADHD. We had her seen by a pediatric psychiatrist last month. He said he didnt think she was ADHD, but just had "bad habits" (sigh, I so dont agree with the fact this is just "bad habits", but, anyway). He suggested we have Early Intervention Unit through the Head Start she is starting this year, take a look at her and do an eval to see if there are any learning disabilities she may be having, as well as have a pediatric ophthamologist check her for color blindness. Right now, she is dealing with reoccurring chalazions in her eyes, so they are wanting to wait till those go away before doing an eye test. Shes had one surgery already to remove 5 chalazions, and theyve come back in one eye. now she has 5 in one eye but they arent major enough to do surgery on yet, its a wait and see for now. She should have her eval with the IU8 team within the next 30-60 days. And, the psychiatrist wants to see her back again mid next month. So, guess we'll just have to wait it out and see what happens.

Also, my son with type 1 diabetes seems to be doing well! We still struggle with highs and lows, but thats gonna happen anyway because in his age, its hard to keep great control of diabetes. But, overall, hes doing well and we get lots of compliments from his endocrinologist about how we are managing him and taking care of him!
Comment by Michelle Howard on July 25, 2010 at 5:00pm
Oh by the way that's me in the background looking on as CJ gets ready for baseball (Miracle League of Westchester!)
Comment by Michelle Howard on July 25, 2010 at 4:59pm
You're an amazing group of moms!

My son, CJ is one funny character. I've learned so much being his mom the last 9 years.

See, CJ (aka Christopher Jeremy) was diagnosed with cerebral palsy, epilepsy and severe development delays.

Being his mom has taught me a lot and I've learned so much that I want to share with others. That's why I started a new blog called, Stress Relief for Caregivers. www.antistressandpainblog.com


CJ's had a lot of challenges (5 surgeries, 4 additional hospital stays) but he comes out victorious all of the time.

Kudos to all you moms out there raising special needs kids. You are special!

Michelle

Comment by valmg on July 12, 2010 at 4:11am
Hi.
Would you be interested in being a contributor on a site just about special needs?
Message or email me for more info.
Comment by Pamela Ott on June 7, 2010 at 10:17am
Pia, I hope the eval goes well for your little guy! We went through the same thing with our son when he was 3 and although they never pinpointed a cause at that age (later we found out he had learning disabilities) it gave us enough information to get the help we needed. We were able to work with a speech therapist that gave us many activities to use every day - not just once a week in therapy and it helped ALOT. With her help, I also paired a lot of the activities with music and singing (it was easier for him to sing than speak at that point!) Hopefully it will just begin to click for him - it did for my son. he still deals with the LD but was able to catch up with language after a couple of years.

I'm following you - hope you'll stop by and follow me too!
http://www.musicforspecialkids.com/
Comment by Dawn Lidwell on June 7, 2010 at 7:16am
Welcome Pia!
My 5 year old son also has some speech delays, but nothing serious. As a matter of fact, hes been going through speech therapy in head start for the last 2 years, is going to be having speech therapy in kindergarden, and just a couple weeks ago at his 5 year check up, his pedi referred us to have him seen by an ear nose and throat dr cuz he FINALLY noticed that the lil piece of skin under his tongue wasnt fully developed properly and needs clipped. (yeah, ive been telling him THAT for almost 2 years lol)
Comment by Dawn Lidwell on June 7, 2010 at 7:14am
Thanks Cj! Ive spoke to a few other parents of kids with ADD/ADHD and it seems the general concensus is age 4 most kids are diagnosed, but I cant help but think if thats just because theres an "extra set of eyes" on the kids, as the kids are entering school and the teachers/nurses at the schools pretty much know what signs to look for where as most parents do not. Ive felt for about a year now that she may have add/adhd, but everytime ive brought it up to the pedi, they kinda shrugged it off sayin to wait till shes 4 because specialists say they cant really tell any younger than that. However, my son has a freind with adhd and he was diagnosed around 3 ish i believe. The main reason I had an idea of what to look for though is because my half brother has it, so ive looked into this when i was pregnant with my kids to see if my kids could get it just based on genetics. I do plan to have her seen by someone, now its just a matter of getting a 'sick child" visit to her pedi so i can tell him i definitely want a referral to get her checked out. Even if its not add/adhd, atleast a specialist might be able to give me some direction as to what exactly IS going on.
Comment by Pia Prenevo on June 6, 2010 at 5:29pm
Hi all! I am new to the group too, and thought I would introduce mysef as well. I am a mom to a wonderful 3 1/2 yr old boy with a severe speech/language disorder of unknown origin. He is not autistic (I believe) but we are still in search of finding out what is really going on. We are going for a big eval in a month and I am thrilled and freaked at the same time. I blog all the time (cheaper than therapy, ehe?) and pretty much focus on our journey, with occassional detours.

Pia
http://www.thecrackandthelight.com
Comment by Cj Poindexter on May 24, 2010 at 10:55am
Welcome Dawn,

Your blog is really great. My son was accurately diagnosed with ADHD at 4. I would see if there is a developmental or behavorial peditrician in your area and try to get a read on what is going on with your daugher. There have been many studies that indicate pre-schoolers benefit from early intervention. And if it its not adhd - the techniques and strategies benefit all children... My son is doing great and he is in Kindergarten!

My blog is http:killsuperwoman.com
 

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