Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://cherishingmommy.blogspot.com/
Members: 135
Latest Activity: Sep 4

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Comment by Fin Anilyn Anthonelly on April 28, 2011 at 11:38am

Madison,

I have found that most often the ability to handle dual diagnosis is not as hard as some people make it.

My son is PDD-NOS and OCD. What you have to do is treat one while taking the other into acct. EG: Treat the Autism and be sure to be aware of his OCD.  
My son doesnt like to get his hands dirty or to have his schedule disrupted. So to best treat his PDD, we always made sure that we didn't perplex him with too much stimulation and not to do things that would trigger his OCD.
Also, find out if he is a sensory seeker vrs someone who avoids alot of stimuli.  What sets him off ect.  These are good things to help find a way for regulation.  So when he gets pushed too far in therapy, at home you can help him regulate himself without huge meltdowns.  Though, some of them are unavoidable.
I suggest watching Temple Grandin speak on youtube and a good dailey dose of Floor time (  http://www.autismweb.com/floortime.htm  ) 
I have a long list of good resource books too if you are interested.
I also blog about things autism related. Last one was about therapy items on the cheap pt 1 ( Mouth toys for speech therapy).
My son is 5 and has had great results with therapies I have him enrolled in. I am open to sharing anything that might help someone else.

Comment by Kathy Radigan on April 4, 2011 at 7:34pm
Check out my latest post "Student of the Week" on my blog www.mydishwasherspossessed.blogspot.com
Comment by Dawn Lidwell on March 20, 2011 at 10:56pm

Thanks Margot. I actually contact them quite a bit LOL! they have been a HUGE help for me over the last year!

 

Nancy, thanks so  much for your input! I will definitely check out your blog tonight! I've had her eyes tested by a specialist thinking it could be a visual issue (or possibly color blindness) and she checked out ok, though he did say that she does have an astigmatism but doesnt need treated as of yet. He said, if she were to take her drivers test, shed pass the vision test, but by the time shes in kindergarden (which she will start kindergarden late due to her birthdate) she will most likely need glasses, but for now, she is seeing well enough not to need them yet. We did anticipate her needing glasses in the future anyway.

 

As for language skills, she was tested for that at the beginning of the school year (as head start tests almost all the kids, and i specifically asked them to run a full testing on her prior to entering anyway. my son has speech issues, but is improving) and she tested ok with that as well... though those test results were on the "low" end of the scale, so to speak, but was good enough to not need speech therapy.

 

The main things her teacher and special needs teacher seem to be concerned with is her difficulties to retain previously learned information, and to apply that information. That is one of my concerns as well, as well as her ability to focus, maintain her attention on a given task (i understand 4 year olds have a short attention span, but i feel hers is shorter than most), some slight behavior issues we've come across (her temper tantrums are still similar to those of the "terrible twos phase", which, im not overly concerned about because i know shes still 4 after all lol!), along with a variety of other things I've seen.

 

I'm not really thinking "the worst" because honestly, whether its a mild "form" (for lack of a better word) of autism, PDD, or whatever the case may be.. I dont really care WHAT it is, just want to find out what exactly IS going on, and how to best help her. I've pondered and done enough research, even though i feel im coming up empty handed until she is seen next month... to get myself past the "reality hit me smack in the face" phase and have since moved on to the "lets just make this better" phase. Going through my son's diagnosis of type 1 diabetes, I pretty much know what my fight or flight reactions are. I didnt really go through a denial phase when he was diagnosed. My initial reaction when he was diagnosed, (though yes i did cry over how his life would change), was to learn all i could about the disease, take the bull by the horns, and just DO IT. Once I get her diagnosis, if there is one, I will most likely do the same... learn all i can about it, then take the bull by the horns and do whatever is needed to be done to help her the best way we possibly can. I have a feeling I'll be getting less sleep than I already do once we find out what is going on, if for no other reason, just so i can have more time to work with her than I do now, but, it is what it is. Mama's sacrifice a lot more than just a little sleep for our babies, right? lol.Either way, I've pretty much mentally prepared myself for whatever diagnosis they can throw at me at this point. I just hate this stupid waiting game.

Comment by Margot Finke on March 20, 2011 at 5:40pm

Madison, the professional who diagnosed your child should be able to point you in the right direction about handling these multiple problems.  They should also be able to give you the names of support groups you can join.  A support group can be a literal life-saver for parents in your situation.  Also, do some research on the internet to find groups with kids that are like yours.  Check with your local hospital.  They often have phone numbers of helpful places, day-care that specialized in problem kids, etc.  It will take a while to gather and list these resources, but once you have them at your fingertips you can call on them for support, comfort and good advice.

Do let us know what you find and how you and your child are managing.  Give yourself a big hug from me.  You deserve it, mate!!

All my son had was a reluctance to read.  this turned me into an author determined to HOOK kids on reading.

Margot's Magic Carpet - all my books on one page.
http://perfectmagiccarpet.blogspot.com/

 

Comment by Madison O'Sullivan on March 20, 2011 at 2:30pm

Hi everyone! Does anyone have a child/adult with autism and also ocd? My son has autism and ocd, along with other symptoms. I was wondering how you go about handling these dual diagnosis when they become a bit overwhelming?

Thanks:)

Comment by Nancy Konigsberg on March 14, 2011 at 3:43pm
Sorry for the typos. 
Comment by Nancy Konigsberg on March 14, 2011 at 3:42pm

Hi Dawn,

I just picked up this thread and wanted to offer some information.  I undestand it's frustrating not knowing wha tthe problem might be, but recognizing that something is off.  Please try not to think the worst. 

It's hard to say based on the information you provide, but these problems can be attributed to visual problems and/or language disorders.  Some expressive language disorders make it look like a child isn't learning, when in fact she is.

There can be short-term memory problems but not I.Q. problems.

It is important to get a differential diagnosis, if there is a diagnosis.  Some children do develop at a slower rate.  Often, though, delays at age 4 indicate some problem.  It could be attention issues only.

It might help to take a look at my site.  Many of my posts describe characteristics of different disordes and explain how to recognize one from the other.

My site is Milestone Mom.http://www.milestonemom.com.  I am a pediatric occupational therapist with over 16 years experience.

Comment by Margot Finke on March 14, 2011 at 3:18pm

Dawn great that you have the school situation sorted out for your son - at least for now.

But when you feel swamped and ready to tear your hair again, do remember to contact those online support groups. I know from personal experience how helpful and comforting a support group can be: an island of sanity in a sea of crazy.

 

Margot's Magic Carpet:
WIN a FREE copy of "Taconi and Claude"
OR  read a sample page.
http://perfectmagiccarpet.blogspot.com/

Comment by Dawn Lidwell on March 14, 2011 at 12:58am
Thanks Margot. I actually am apart of a diabetes support group, on Facebook (and twitter, when I remember to log in there LOL!). I also did get to the bottom of the situation with the school nurse, and let them know how much it ticked me off what they said and did. Got that worked out, though, before it was worked out, I did send in those whole grain snacks LOL! So far, hes been eating more peanuts and apples than the whole grain stuff LOL (seen that one coming lol) . She said she was just trying to figure out what the school could do to help prevent those post-gym lows hes been getting, but, honestly, that part is up to me, not them. Oh well, they got their whole grain snacks (which i have little to no intentions on buying whole grain stuff ALL the time), and, I think I may have finally figured out what works to prevent the post-gym lows he had been having... and oddly enough, it had little to nothing to do with whether he got wholegrains or not LOL! Either way, seems its all worked out now... now just time to get things figured out with my daughter (till the next diabetes related incident occurs lol)
Comment by Dawn Lidwell on March 14, 2011 at 12:48am
Thanks Jaime. Thats pretty much what their pediatrician said too, and thats what we are doing. The waiting game is killing me though lol! Her first appt with a developmental pediatrician is April 28th. Like I told my MIL, I dont really care WHAT the diagnosis is, just as long as we get figured out what is going on, and someone can give me some tips on how best to help her. Poor girl has been dealing with these same difficulties for the last almost 3 years now. I just wanna help my baby girl. The end of april cant come soon enough!
 

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