Mom Bloggers with Special Needs Kids

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Mom Bloggers with Special Needs Kids

Converse with other MOM bloggers. This is a place where we can share stories about our lives, kids, husbands and anything else you can think of. Funny or Sad....share them here!

Website: http://cherishingmommy.blogspot.com/
Members: 139
Latest Activity: Apr 8

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Comment by Margot Finke on March 14, 2011 at 3:18pm

Dawn great that you have the school situation sorted out for your son - at least for now.

But when you feel swamped and ready to tear your hair again, do remember to contact those online support groups. I know from personal experience how helpful and comforting a support group can be: an island of sanity in a sea of crazy.

 

Margot's Magic Carpet:
WIN a FREE copy of "Taconi and Claude"
OR  read a sample page.
http://perfectmagiccarpet.blogspot.com/

Comment by Dawn Lidwell on March 14, 2011 at 12:58am
Thanks Margot. I actually am apart of a diabetes support group, on Facebook (and twitter, when I remember to log in there LOL!). I also did get to the bottom of the situation with the school nurse, and let them know how much it ticked me off what they said and did. Got that worked out, though, before it was worked out, I did send in those whole grain snacks LOL! So far, hes been eating more peanuts and apples than the whole grain stuff LOL (seen that one coming lol) . She said she was just trying to figure out what the school could do to help prevent those post-gym lows hes been getting, but, honestly, that part is up to me, not them. Oh well, they got their whole grain snacks (which i have little to no intentions on buying whole grain stuff ALL the time), and, I think I may have finally figured out what works to prevent the post-gym lows he had been having... and oddly enough, it had little to nothing to do with whether he got wholegrains or not LOL! Either way, seems its all worked out now... now just time to get things figured out with my daughter (till the next diabetes related incident occurs lol)
Comment by Dawn Lidwell on March 14, 2011 at 12:48am
Thanks Jaime. Thats pretty much what their pediatrician said too, and thats what we are doing. The waiting game is killing me though lol! Her first appt with a developmental pediatrician is April 28th. Like I told my MIL, I dont really care WHAT the diagnosis is, just as long as we get figured out what is going on, and someone can give me some tips on how best to help her. Poor girl has been dealing with these same difficulties for the last almost 3 years now. I just wanna help my baby girl. The end of april cant come soon enough!
Comment by Jaime Huff on March 13, 2011 at 9:53pm
Dawn, a neurologist probably wouldn't be the best place to start.  You really want to see a Developmental Pediatrician instead of a General Peds and have THEM order the testing and referrals.
Comment by Jaime Huff on March 13, 2011 at 9:50pm
I have a giveaway going for a Yoplait Prize Pack.  Frugal, Green and Book Nerding Mom of a Shaken Baby Survivor
Comment by Margot Finke on March 9, 2011 at 10:05pm

I received this today from my Conputer/Internet Guru - Kim Komando.  I only download what she has tested and approved.

If your child is autistic, you might find this helpful.

Robot helps autistic kids play

A robot is helping autistic children understand emotions. Kaspar the robot looks like a boy. It can simulate playing and laughing. Researchers say the robot is incredibly effective in helping autistic children become more affectionate. There are iPad apps made to help with autism, too. Click here for the best ones. >>

 

Margot's Magic Carpet - all my books on one page.
http://perfectmagiccarpet.blogspot.com/
Comment by Margot Finke on March 7, 2011 at 5:26pm

Dawn, I really feel for you, mate.  No wonder you feel like "snapping."  I got hot under the collar just reading your post.  I REALLY think you would find joining a support group for the parents of child diabetics very helpful.  You would not feel so isolated and alone.  Talking to people who have the same problems (and maybe some solutions as well) will embower you no end!!

Go online and search out groups near you - or even just online.  Keep in touch and let me know what you find.

 

Margot's Magic Carpet:
WIN a FREE copy - or read a sample page.
http://perfectmagiccarpet.blogspot.com/

 

 

 

Comment by Dawn Lidwell on March 7, 2011 at 12:53am

Thanks Margot. I do plan to ask for a referral to a neurologist also... even if I have to stand in that office and not leave till they give me one! For years these pediatricians have been telling me "its normal", and obviously its not!

 

Now, to boot, im also dealing with my son's school nurses. GRRR ready to SCREAM! My son has type 1 diabetes, has been diagnosed for 2 1/2 years, and they are trying to educate ME on what to feed my kid?! For freaking REAL?! He is the first child theyve had this young with this damn disease, this is the first year theyve physically had to count the carbs, dose the insulin, troubleshoot screwy numbers, the whole freaking nine yards (which HALF the time they are calling ME asking ME what to do), and they have the damn nerve to tell ME about what the hell the difference is between a complex carb and simple carb is??? Are they trying to be his damn nurse at home too?! OMG im SO freaking ready to SNAP!

 

Thats ok, I'll fix them up. They want me to put him on a damn whole grain diet... FINE. Let's see how well they can get him to eat nothing but whole grain tostito chips, whole grain crackers and cheese, and peanuts... over, and over, and over, and over, and over, and over..... oh y eah, and over again! Hes 5! Come on people!(meaning nurses). The only damn thing I asked for was that if they give him a freaking apple as a snack after gym/recess... to give him something out of the snack bag that IVE PROVIDED as well, to help carry his bgs through for the next 2-3 hours till dinner... otherwise, his sugar crashes. They've SEEN this, and they have the audasity to question ME?! Hell, they arent even smart enough NOT to give him a freaking cupcake WITH ICING  while his blood sugar is 300, and not give him something else to prevent a crash later. What happened? Yep, you got it! 3 hours later, they are freaking calling me because his blood sugar is 42! Oh, but they hold the damn licensure. I guess that means they are God and know every freaking thing on the PLANET about Type 1 Diabetes and how to manage and care for it, right?!

 

Sorry, needed to vent.

Comment by Margot Finke on March 5, 2011 at 4:55pm

If you want to encourage your Boys or other reluctant readers to read:

Read TERRIFIC REVIEWS of my mid-grade adventure for boys. 

http://mysite.ncnetwork.net/restbcm8/GAP Reviews.htm

Margot's Magic Carpet - all my books on one page.

WIN a free copy of Taconi and Claude

http://perfectmagiccarpet.blogspot.com/

Comment by Margot Finke on March 1, 2011 at 4:17pm

Dawn, my heart goes out to you, mate.  Still, at least you have teachers going to bat for your daughter now. 

I would think you need a referral from your doctor to a child neurological specialist.  They deal with the brain and how its connections work.  Perhaps it is time to find a new and more involved pediatrician.  Keep in touch: lt us know what you discover.


Hugs to you and your two kids.

Margot's Magic Carpet - all my books on one page http://perfectmagiccarpet.blogspot.com/

 

 

 

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