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Profile Information

What is your blog name?
Little Miss Hannah - Our Fight Against Gaucher's Disease
What is your blog URL?
Twitter URL
Share a little something about yourself with other moms.
Mom to an 8yo boy with ADHD (well controlled on meds), a 4yo princess, and a July '08 baby girl born with Gaucher's Disease, an extremely rare genetic metabolic disease with physical and possible neurological symptoms.
What is your blogging philosophy?
There are no rules
I have been blogging since...
Off and on since 2000

Video created to help save Hannah's life!

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Comment Wall (12 comments)

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At 12:39pm on July 11, 2013, Lea said…

Work At Home Mom, WAHM, Mom Blogger

I am stopping by to say "hello" :)
I haven't been here in a while.
I welcome your friendship :)

Lea @ Mother Baby Child & Weight Loss Help

At 12:43am on August 5, 2012, Dalynn McCoy said…

Hi! Found you on the twitter group and came to follow you, but twitter isn't recognizing the link. If you comment me with an updated one, I'll follow!

At 6:17pm on August 18, 2010, Cynthia Helwig-Putorti said…
Hi there from The Girlz Korner in upstate New York where you'll find light, witty and rather entertaining articles on every topic imaginable from The Little Black Dress to Making Whoopie. So if you get a chance to kick back and exhale, if only for a brief moment ... come on over and see me some time.
At 6:45pm on July 21, 2010, Ingrid Stauffer said…
welcome to MBC. when you have a change please visit my blog at or my website at
At 6:05pm on April 25, 2009, Annissa said…
My son was born with a rare genetic disorder and I was told that A: he wouldn't survive the pregnancy, B: If he did he would die shortly after, or C: if by some MIRACLE he lived, he would have no quality of life. Today, he is 7 years old and you wouldn't know anything was wrong with him unless I told you. Faith and Hope goes a LONG way!! I added your blog to those that I read. I will be thinking of you and Hannah often! Everytime my son gets sick, I freak out cuz anything can go wrong at any time and I could lose him, and there is nothing I can do to stop it - it's a hard reality to live with. I also have a son with ADHD and another with a cyst in his brain along with a bunch of other stuff going on.
At 1:27pm on February 3, 2009, Jean Stockdale said…
God bless you for all that you are dealing with. You have such a gracious spirit. What a blessing you are. Thanks for sharing your journey. I was just on your site and faved you.

If you ever get a chance, stop by mine at
At 10:26am on January 30, 2009, Tara Jefferson said…
What a cutie pie! I had to stop by and say hi! :)
At 9:10pm on January 5, 2009, Rachel_L said…
Hey -- in response to your question about Twitter: it helped bring traffic a couple of ways. I use it from time to time to tweet about specific posts I have written. I don't have a ton of people following me (a couple of hundred or so) but many of them now subscribe to my blog/follow my blog because of my tweets.

I also participate in the Girls Night Out events from time to time -- this is a good way to meet other women bloggers and introduce them to my blog.
At 12:11am on January 3, 2009, Samantha said…
Blessings to you and your gorgeous family in 2009. I took a moment to peak at your blog because I am always interested in other special kiddos & moms. My son's dx took us over 5 years to get right. My heart is with you & yours. I look forward to following your blog!
At 4:34pm on December 30, 2008, Dee said…
Hey Carrie! Welcome to MBC! :)

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