I can’t tell you how blessed I feel that I have been asked to write a guest post for The Village of Moms. You see I am one of the luckiest Mami’s in The Village, because of the “Gift” that I received from another Mom…a Mom I may never meet but who changed my life with her decision. A Mom whom I think about daily. A Mom who brings tears to my eyes as I type these words…
On December 29, 2007, a Mom whom I never met decided that in the midst of her grief she would save another Mom the pain that she was feeling – that she would save the life of child she had never met…that she would save my child.
Three years ago I would have read a post or article about organ donation and thought, “I am an organ donor – I have it on my driver’s license,” but never would I have given it a second thought. I certainly wouldn’t have brought up the conversation with my hubby….at least not a serious one. I think I was a pretty typical organ donor. I knew it was the right thing to do, but never really spoke about it. Little did I know the journey our daughter would be facing. Little did I know how much she would change the way I look at the gift of organ donation.
Let’s rewind to December 2006…
She had all 10 fingers and all 10 toes. She was here and she was perfect. What more could a new mom ask for? But at four months old, we were told our daughter wouldn’t live to see her 2nd birthday unless she received a liver transplant by her first birthday. You see, Savannah was born with Biliary Atresia, a rare liver disease affecting approximately 1 in every 15,000 births.
I remember when she was first diagnosed. The pediatric GI looked us in the eyes and told us that our baby was sick, very sick. We got in the car, and at some point between the tears we decided to take her to the beach for the first time – this day would not be all about the tears.
We soon learned that Savannah would need a liver biopsy to confirm the diagnosis. This was to be the first of many hospital visits. When the surgeon came out he said, “My heart skipped a beat when I felt your daughter’s liver.” He then placed the photos of her liver on the table. My heart stopped. Simply put, my perfect and tiny girl was dying.
Read the FULL GUEST POST here.