Happy Twenty Ten to all of you! I am posting here, and everywhere else I can think of, to ask for help. No worries …. Julia is fine. As a matter of fact tomorrow is a monthly clinic appointment and we are optimistic that everything shall continue to progress normally. “No more Cancer in 2010″ is our mantra!
What I am looking for is a business minded person who can help us get Julia’s Rainbow up and running. I have come to the realization that though I have the enthusiasm and drive, I do not have the knowledge needed to get non-profit status and move on to the big plan I have in my brain … stop laughing! It is so important to me that there be an organization out there to offer families the hope that not only will their child and family get through the battle with cancer but that there are thousands of people out there who want to help them live their lives and maintain what was normal to them before they got the diagnosis.
“Normal” is different for every family and they most certainly will never see the same exact normal again, but they should NEVER have to give up their home that they have known, the status of life they have worked so hard for and the security of their lively-hood so that they can be free to fight for their child’s life!
Families also need to hear stories of families that have made it through the darkness and come out the other end still fighting, but intact! Even in our very darkest times, knowing that our daughter’s sheer existence was out of our hands, we hung tightly to stories of kids who were growing and thriving and beating the beast. I have said it before and I mean it to my soul, this cannot have been for nothing! The children that I have introduced to you all and thousands I have not had the chance to, have not battled and fought for us to forget them. Some are now looking over their families and (I truly believe) are with them every day, but not on this earth. Some are growing and carrying with them the scars of their battles. Some scars are visible to the eye, some are not, but no one leaves this war zone unscathed.
Please file this in your memory banks and if you are aware of anyone who has the knowledge and where-with-all to make this happen, please let me know!
For those so inclined to, please pray for:
1) Julia’s continued good health
2) Ability to get Nonprofit status for Julia’s Rainbow
3) Our ability to make this what I want it to be for so many families who are supporting children with chronic illness
Thank you as always for your love and support and for helping us make 2010 the year we make changes and strides in how we care for our kids.