I know people have been worried but we needed a day to ourselves today. Please be patient as we adjust to what is going on. 



Jude has good hours and bad hours. Fortunately last night he had a very good hour. He was very smiley and looked much more like himself. His respiratory and heart rate was still high but he was much better than the day before. Here is a great shot of how he looked and how responsive he was to me. …

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Some people may not consider themselves hero's, but in others eyes they most certainley are. Rich at http://www.theperfectfocus.com/ is one of this people! Not only is Rich a champion for spreading awareness about Canine Companions, but he is a symbol to all to not be limited by disabilities. Rich is sight impaired yet he is an amazing photographer, a Judo instructor, and a friend to many people including my little Jude. We have never met Rich personally, but he takes the time to follow… Continue

According to Mike Jude seems to be doing better today. He seemed to revert back to his old feeding schedule last night after his seizure, because he woke at 4am hungry. Mike grumbled, and then slowly got out of bed to feed Jude 6 ounces.



So my poor Hubby has to check into the nursing home with Jude tonight to finish qualifying for the MDCP. This is the program that the state of Tx offers medically dependent children. It based off the child's "income" not the parents, which means… Continue

Yesterday seemed to start a hero theme, so I thought I would proceed with another blog I would like you to visit.



Awhile ago when I was pregnant with Jude I was a member of the Just Mommies website. We all talked and shared our stories in different "due date clubs". I, being my nosey self would hunt through other groups including those of moms who were further along than me. One day I came across Liz Logelin. I never personally chatted with her, but I peeked in at what was going on… Continue

Forgive my grumpy attitude yesterday I was a bit overwhelmed. My hubby has promised to be nice to me today, and stop by and see me later.



After my rough day everything finally seemed to fall into place last night. I was determined to get home and just appreciate my kids. Jude was still having small spasms, and I believe that is causing his lack of eating. He has some blood work today, and he will see the doctor on Monday. I know he will increase the Depakene in hopes it will… Continue