1. CF is a Multi-System Disease.

People are slowly becoming more aware that cystic fibrosis affects the lungs and digestive system but many do not realize that CF can also affect many other parts of the body. Reproductive issues, liver disease, diabetes, osteoporosis, and nasal polyps (to name a few) are all common effects that cystic fibrosis can have on the body due to the increased thick, stick mucous that is excreted in the body and the difficulty in absorbing…

Sometimes, I can't help but feel envious watching other healthy children eat and drink normally, without the need for medication. Anytime Sasha wants a bite of my muffin, or a glass of milk, or a tiny piece of chocolate, or just about anything, she has to have enzymes so that her body can get the help it needs to digest the fat and protein in the food. Of course giving Sasha enzymes is a minor request in order to keep her growing and as healthy as possible, but still there is that…

I wish that I knew how hard this would be,

so I could feel better prepared,

I wish that I had all the answers,

so you would never need to be scared.



I wish that I always knew what to do,

but each day I will try,

to learn how to cope with the fears,

so you never have to see me cry.



I wish that I could be supermom,

but some…

Throughout Sasha's recent hospital stay there were definitely some new challenges and some heartbreak. Between having the ng tube inserted multiple times, a gastric enema done, blood work pics, projectile vomiting, too many x-rays, and countless hours of medications, it was absolutely traumatic at times, both for Sasha and myself. I do not think I can full explain the devastation I felt during these past couple weeks. Having to hold my baby girl down as tubes were put into her tiny body,…